It's back
This is the post I never, ever thought I'd be writing. It's still hard for me to believe and to accept, because I have felt so good for so long. But it's real.
Starting a couple of months ago, I had some pain in my chest, which I thought was nerve pain. It moved around, was intermittant, and went away with an advil. I told Dr. Glick and Carrie (nurse practitioner) about it, and they agreed that it was probably nerve pain resulting from surgery and radiation. However, about a month ago, I noticed that the pain was more concentrated in one area, and that that area was somewhat swollen - a bump. I kept poking it, which of course probably made it worse. Finally, I called Carrie. She said to stop poking it, take advil, and wait two weeks.
I took her advice. But then, a week later, Elizabeth Edwards announced her cancer recurrence. Her description of pain in her rib, coupled with watching Dr. Glick on NBC10 talk about her case, sent me into a spiral of anxiety. I called the hospital emergency number at 8 pm that night. Dr. Glick called back and chastised me for using that number, and said to call the office the next morning and make an appointment to see him the following Monday.
When I saw him that Monday, he looked at it and said he didn't know what it was, that it looked like a prominent sternum, but that we'd have scans done to make sure. He ordered a combination PET/CAT scan for the following Monday (April 2). I had the scan done on Monday this week, and on Tuesday, I got a call from Carrie and Dr. Glick. I was in Whole Foods. Carrie said, We have some news we need to share with you. Are you alone right now? I said, just tell me. They said that the scans came back positive for breast cancer, and that I need to come in immediately. So I called Jason and mom and dad, and we all went over to Penn to hear the report.
The report was not good. The cancer has metastasized into my liver, lungs, bones, and soft tissue. The pain in my chest is most likely a soft tissue tumor. Dr. Glick said there's still treatment, although it's not curable. The goal is to push it into remission. I started an oral chemotherapy called Xeloda on Wednesday, had a brain MRI on Wednesday that thankfully came back clear, had a port put back in yesterday, and will start another chemo next week, called Avastin.
So, I am starting up the blog again, so that I can keep everyone updated. I'm not feeling as humorous and witty this time around, but maybe that will change. I want to be around as long as possible, so I will continue to fight this as hard as I can. In six to eight weeks, I'll have another PET/CAT scan to see if the drugs are working. If they are, I'll stay on them. If not, I'll switch. Dr. Glick says he has a list as long as his arm with possible drugs to use.
I will continue to work and do everything that I love to do. The life that I'm living now is exactly as I want it to be, and I feel lucky in that respect. There is not one thing I want to change. So, I'll just keep doing what I'm doing and taking it one day at a time, appreciating everything and taking nothing for granted. It's how I've always lived my life.
Starting a couple of months ago, I had some pain in my chest, which I thought was nerve pain. It moved around, was intermittant, and went away with an advil. I told Dr. Glick and Carrie (nurse practitioner) about it, and they agreed that it was probably nerve pain resulting from surgery and radiation. However, about a month ago, I noticed that the pain was more concentrated in one area, and that that area was somewhat swollen - a bump. I kept poking it, which of course probably made it worse. Finally, I called Carrie. She said to stop poking it, take advil, and wait two weeks.
I took her advice. But then, a week later, Elizabeth Edwards announced her cancer recurrence. Her description of pain in her rib, coupled with watching Dr. Glick on NBC10 talk about her case, sent me into a spiral of anxiety. I called the hospital emergency number at 8 pm that night. Dr. Glick called back and chastised me for using that number, and said to call the office the next morning and make an appointment to see him the following Monday.
When I saw him that Monday, he looked at it and said he didn't know what it was, that it looked like a prominent sternum, but that we'd have scans done to make sure. He ordered a combination PET/CAT scan for the following Monday (April 2). I had the scan done on Monday this week, and on Tuesday, I got a call from Carrie and Dr. Glick. I was in Whole Foods. Carrie said, We have some news we need to share with you. Are you alone right now? I said, just tell me. They said that the scans came back positive for breast cancer, and that I need to come in immediately. So I called Jason and mom and dad, and we all went over to Penn to hear the report.
The report was not good. The cancer has metastasized into my liver, lungs, bones, and soft tissue. The pain in my chest is most likely a soft tissue tumor. Dr. Glick said there's still treatment, although it's not curable. The goal is to push it into remission. I started an oral chemotherapy called Xeloda on Wednesday, had a brain MRI on Wednesday that thankfully came back clear, had a port put back in yesterday, and will start another chemo next week, called Avastin.
So, I am starting up the blog again, so that I can keep everyone updated. I'm not feeling as humorous and witty this time around, but maybe that will change. I want to be around as long as possible, so I will continue to fight this as hard as I can. In six to eight weeks, I'll have another PET/CAT scan to see if the drugs are working. If they are, I'll stay on them. If not, I'll switch. Dr. Glick says he has a list as long as his arm with possible drugs to use.
I will continue to work and do everything that I love to do. The life that I'm living now is exactly as I want it to be, and I feel lucky in that respect. There is not one thing I want to change. So, I'll just keep doing what I'm doing and taking it one day at a time, appreciating everything and taking nothing for granted. It's how I've always lived my life.

10 Comments:
rachel,
i can't imagine how this blog can come to sit next to the one below it. i guess for anyone, the distance between a moment or day or a year is something of an illusion that we should all respect in our own lives that circumstances are incalcuable and its best to make the best of what we are given. you are truly an example celebrating that spirit
dan
Thank you, Rachel, for giving us all the details -- upsetting as they may be. Although you are the person who will be getting the treatments, know that we will be traveling the road with you.
Rachel, I'm so sorry to hear you have to go through all this-and so moved by your appreciation of all the good in your life- sending you love- Eleanor
Dear Rachel,
I cannot imagine what you are going through, after such a good year, with so many blessings. Reading your blog helps us be there with you. If you just could feel the love and thoughts coming from all of us in Sharon. You are an amazing person
Rosette
This is so bizarre b/c I checked your blog a couple of weeks ago thinking maybe you had a good news update. I thought maybe because it was your cancer free anniversary, you would have an update on here. I'll be honest, I never expected to read this. You have support and love across the East Coast, that's for sure. We're with you every step of the way.
Barb (Lainie's Daughter)
Hi Rachel -- Kate Farnady just filled me in. Don't know if you even remember me, but my prayers and meditations are with you. You are a brave woman -- David Cameron
I was so sad to hear from your Aunt Marilyn about the change in your status. We're all praying for you.Love to you and Jason from Cousin Lanie
Dear Rachel,
What a rude awakening after a wonderfully blessed year. Thank you for letting us be part of your life, good and bad. You are a survivor and a fighter and we, all your fans, are behind you with support, positive thoughts and prayers. Hang in there my friend. Love, hugs and kisses to you and your family
Judith
Rachel-
Ugh! Looking at this blog again, as great as it has been, is something I wish I'd never have to do again. But I continue to learn a lot from you. Our love goes out to you and your family.
Dan
Rachel,
I got your blog from Kate Farnady...
Was so excited to read your name
glossing over her email until I saw
the words cancer and metastasized...
My heart jumped into my throat. I
am so sorry this happened to you.
You are such a lovely human being Rachel, if you are anything like
the girl I remember in our whirlwind journalism romance-- I have no doubt you are twice that person now, after
all you've been through.
I miss you, my heart goes out to you... and I will continue to read your blog.
Here are some pictures of my utterly insane family if you'd like a peek.
http://new.photos.yahoo.com/bnrush/album/576460762314103149
My email is brush@anim.dreamworks.com
I will send you every bit of positive energy I can find. I'll ask my kids to send it too. Their positive energy is potent! I know you can fight your way through this next battle, even after hearing the crushing news. Other people have, and so can too. You WILL, Rachel, I know you will. You haven't come this far for nothing.
I will be in touch fair maiden!
Sincerely,
Ben Rush
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