The losing speech
Even though I said I was preparing two blog entries, like a presidential speechwriter prepares a speech for winning and losing, this is really not the one that I was spending the most time thinking about.
When Carrie and Dr. Glick walked into the room, I knew it wasn't good. No smiles, a lot of eqivocating. Finally, Dr. Glick explained that the scans were different (the first was a PET/CT without contrast, this was a CT with contrast), so the comparisons were difficult to make. But overall, the scans showed that there were no significant changes. There may have been one tumor in the liver that shrunk a little, but the others stayed the same. The tumors in the rest of of the places stayed the same. So that's the good news. No major progression. But the bad news is that the tumor markers almost doubled, and my liver is enlarged. With all that information, Dr. Glick decided that it's time to change treatment. Next up, Abraxane. Good news: Abraxane is a new kick-ass drug that has had a lot of success in triple-negative cancers. Bad news: my hair will all fall out.
All this news was hard. I was expecting to hear something much better. I have to admit I'm depressed, angry, a bit nauseous, and scared. But also hopeful that this one will work better. I know sometimes it takes some time to figure out the right "cocktail."
I wanted so much to be able to give everyone really good news today. I wanted so much to write, cheerfully, how the tumors were shrinking and how I could continue to stay the course. I wanted so much to write about how Jason and I could now plan our trip to Alaska. But I can't. I hope you're not disappointed in me. I know I did what I could. The drug just wasn't the right one. What I'm upset about most is that I will look like Cancer Patient. Right now, I feel like I can masquerade as a normal person. But with no hair and no eyelashes and no eyebrows, that's pretty impossible to do. As long as it kills the cancer, though, it's worth it.
And so we keep going. Abraxane is an infusion every week for three weeks, then one week off. In two months, I'll have another CT to see where things are; hopefully, it will show that the tumors are shrinking, and I will stay on this indefinitely. That's the plan right now. But as we know, plans always change. I'm just trying to keep up.
When Carrie and Dr. Glick walked into the room, I knew it wasn't good. No smiles, a lot of eqivocating. Finally, Dr. Glick explained that the scans were different (the first was a PET/CT without contrast, this was a CT with contrast), so the comparisons were difficult to make. But overall, the scans showed that there were no significant changes. There may have been one tumor in the liver that shrunk a little, but the others stayed the same. The tumors in the rest of of the places stayed the same. So that's the good news. No major progression. But the bad news is that the tumor markers almost doubled, and my liver is enlarged. With all that information, Dr. Glick decided that it's time to change treatment. Next up, Abraxane. Good news: Abraxane is a new kick-ass drug that has had a lot of success in triple-negative cancers. Bad news: my hair will all fall out.
All this news was hard. I was expecting to hear something much better. I have to admit I'm depressed, angry, a bit nauseous, and scared. But also hopeful that this one will work better. I know sometimes it takes some time to figure out the right "cocktail."
I wanted so much to be able to give everyone really good news today. I wanted so much to write, cheerfully, how the tumors were shrinking and how I could continue to stay the course. I wanted so much to write about how Jason and I could now plan our trip to Alaska. But I can't. I hope you're not disappointed in me. I know I did what I could. The drug just wasn't the right one. What I'm upset about most is that I will look like Cancer Patient. Right now, I feel like I can masquerade as a normal person. But with no hair and no eyelashes and no eyebrows, that's pretty impossible to do. As long as it kills the cancer, though, it's worth it.
And so we keep going. Abraxane is an infusion every week for three weeks, then one week off. In two months, I'll have another CT to see where things are; hopefully, it will show that the tumors are shrinking, and I will stay on this indefinitely. That's the plan right now. But as we know, plans always change. I'm just trying to keep up.

9 Comments:
Rachel, you're a profile in courage.
Dan
Rachel - how could we ever be disappointed in you? You're giving this all you've got. I am proud of you for your courage and determination to beat this.
Stephanie C.
I'm so sorry you have such a tough hand to play -but disappointed in you??? I admire you so much- Let's hope this cocktail is one- Eleanor
I can't imagine that anyone is disappointed in you. You are just remarkable and an inspiration to us all. Just a new front on which to fight. I'm getting to know you. Will there be a line of headscarfs?
Rachel,
you have been and remain a corageous inspiration to us all. This is only a small "glitch" in the world of modern medicine. A lady I work with had the same thing happen to her and she too went on Abraxane and it has proven to be most successful for her. We will get through this and all be having cocktails in your honor at your CT report in a couple of months. Until then, it's onward and upward, and positive prayer, etc....You will beat this. You have to believe that, we all do.
Rachel, you're the most courageous woman I know. How could anyone be disappointed in you? You're strong, brave, determined and beautiful in every way. Who needs hair anyway? Judi
Rachel, you are a beautiful woman and no hair will only compliment that.
Here's to having a 'cocktail' very soon when we read that this new 'cocktail' has worked for you. You are in my thoughts and prayers. -Cecelia
rachel -- i'm so sorry to hear this news -- i know today must have been so rough mentally. hang in there -- i have one special boobies scarf coming your way -- remember bald is beautiful! hugs and kisses from me and janet
No way I'm disappointed in you!! I'm actually disappointed in all the bad guys inside you - how could they stick around when you're putting up the best fight and have the greatest attitude I've ever seen!!! And I've seen you bald and you're still gorgeous - your hair is only what's on top of a beautiful woman, inside and out. I love you so much - hang in there ...
Connie
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